Inside the Mind of a Synaesthete

"The Figure 5 in Gold," by Charles Demuth, 1928

The Figure 5 in Gold, Charles Demuth, 1928

“I have this rather freakish gift of seeing letters in color,” novelist Vladimir Nabokov told a BBC interviewer in 1962. “It’s called color hearing. Perhaps one in a thousand has that.”

The Russian-born author of Lolita, Pale Fire, and other exuberantly witty books claimed that when he was a child, he saw the number 5 as red, and that he had continued to perceive numbers and letters as having their own distinctive hues.  The interviewer asked Nabokov how the initials of his own name appeared to him. He replied:

V is a kind of pale, transparent pink: I think it’s called, technically, quartz pink: this is one of the closest colors that I can connect with the V. And the N, on the other hand, is  a greyish-yellowish oatmeal color. But a funny thing happens: my wife has this gift of seeing letters in color, too, but her colors are completely different.  There are, perhaps, two or three letters where we coincide, but otherwise the colors are quite different.

It turned out, we discovered one day, that my son, who was a little boy at the time — I think he was 10 or 11 — sees letters in colors, too.  Quite naturally he would say, “Oh, this isn’t that color,  this is this color,” and so on. Then we asked him to list his colors and we discovered that in one case, one letter which he sees as purple, or perhaps mauve, is pink to me and blue to my wife. This is the letter M. So the combination of pink and blue makes lilac in his case. Which is as if genes were painting in aquarelle.

Nabokov’s “color hearing” — a curious neurological phenomenon known as grapheme-color synesthesia — also found its way into his books. In Bend Sinister, the protagonist, Adam Krug, says that the word “loyalty” reminds him of “a golden fork lying in the sun on a smooth spread of pale yellow silk.”

In his autobiography, Speak, Memory, Nabokov launches into a virtuoso synaesthetic reverie: ”The long a of the English alphabet… has for me the tint of weathered wood, but a French a evokes polished ebony. This black group also includes hard g (vulcanized rubber) and r (a sooty rag being ripped). Oatmeal n, noodle-limp l, and the ivory-backed hand-mirror of o take care of the white… Passing on to the blue group, there is steely x, thundercloud z and huckleberry h. Since a subtle interaction exists between sound and shape, I see q as browner than k, while s is not the light blue of c, but a curious mixture of azure and mother-of-pearl.”

One of the ravishing pleasures of reading Nabokov is sensing a deep rightness in his word choices (even in English, which was his second language) that goes beyond having a knack for finding le mot juste to make his prose cohere at every level: phonetic, orthographic, and semiotic. Surely the atypical wiring of his brain gave Nabokov an advantage in his quest for this comprehensive unity.

Synaesthetic alphabet

Synaesthetic alphabet

Few writers have mapped this uncanny phenomenon with such obsessive precision, but the gift of multiplex senses turns out to be not as freakish and rare as Nabokov believed. Researchers have learned that even chimpanzees associate low notes with darker colors with high notes with brighter ones. In a recent paper in Psychological Science, David Eagelman of the Baylor College of Medicine argues [PDF link] that synaesthetic ability falls along a spectrum, the end product of multiple processes of neuronal excitation, inhibition, and pruning in the brain gone awry, “all of which happen to converge on the similar result of unusual perceptual or cognitive pairings.”

Another recent study raises the possibility that we are all born with a capacity for sensory crosstalk that diminishes as we get older and our neural networks are streamlined for greater efficiency. Nabokov also believed that we are all born synaesthetes, but because science hadn’t yet elaborated the concept of neuroplasticity, he blamed the loss of the gift on “stupid parents” telling their kids, “It’s all nonsense. An A isn’t black, a B isn’t brown. Don’t be absurd.”

In fact, however, hacking the firewalls between senses may turn out to be a useful skill that parents could teach kids who were not born that way. In an ingeniously designed blog post, Macquarie University autism researcher Jon Brock discussed a recent report by V.S. Ramachandran in Neurocase [PDF link] of a young man with Asperger’s syndrome who was instructed to associate emotions with colors to improve his social perspicacity. As he got older, the young man learned to gauge how he felt about a person by the color of the “halo” around the face.

Nabokov was not alone in his conscious employment of his gift to serve his art. Master painter and digital artist David Hockney relies on his synaesthesic abilities to generate hyper-vivid images that glow with an almost child-like visual innocence. He told author David Burton that when he was designing a set featuring the image of a tree for a production at the Metropolitan Opera of a piece by Maurice Ravel, he listened to the relevant section of the score and “the tree painted itself.”

Felled Trees by David Hockney

Felled Trees by David Hockney

Likewise, the genre-stretching jazz, folk-rock, and avant-garde music of Duke Ellington, Syd Barrett, Alexander Scriabin, and Oliver Messaien [PDF link] was allegedly energized by each composers’ bimodal perceptions. In his epic multi-volume manifesto Traité de rythme, de couleur, et d’ornithologie (“Treatise on rhythm, color and bird song”), Messiaen described chords as “blue-violet rocks, speckled with little grey cubes, cobalt blue, deep Prussian blue, highlighted by a bit of violet-purple, gold, red, ruby, and stars of mauve, black and white.”

For a drearily mono-sensory person like me, it’s tough to read these accounts without feeling a (sour-apple green?) twinge of envy. What would it be like to live in a world in which each prime number generated its own harmonics, every letter of the alphabet was associated with a characteristic odor (the freshly laundered scent of L, the fulsome perfume of Q), and Miles Davis’ “Flamenco Sketches” (on Kind of Blue, natch) shimmered like an iridescent watercolor over the heads of the bored baristas at the local coffee shop?

Color music notation

Color music notation

Now a prolific multimedia artist and writer named Perry Hall [Flash required], who was born with his own version of Nabokov’s quirky gift, has developed an iPhone/iPad app called Sonified that enables even those low on the synaesthetic spectrum to experience light, colors, and movement morphing into sounds.

I first became interested in Hall’s work seeing a series of haunting HD videos made in 2006 that he called Material Study, featuring light dancing on the surfaces of ferrofluids that surge and swell like some kind of protean lava. While convalescing from a bout of Lyme disease, Hall decided that he needed to set his synaesthesia loose in the wild, as he puts it. He and his digital collaborators developed software that siphons the luminance and color values from the video cameras in iPhones and iPads (only later-generation devices like the iPhone 4, 4S and iPad 2 will work correctly) and uses them to trigger stereo samples from a library of CD-quality audio composed for the purpose.

Photo of Perry Hall

Perry Hall, artist, synaesthete, and designer of Sonified

When Hall — who helped create the lush “painted world” sequence in What Dreams May Come, the 1998 film starring Robin Williams – told me about Sonified in email, I knew I had to try it myself. After downloading it from the App Store, I boarded a streetcar here in San Francisco, slipped on a pair of headphones, and aimed my phone out the window just as the train streaked past a row of brightly painted Victorian houses, accelerating through shafts of sunlight and shade on its way into a tunnel.

The effect of the audio-visual-kinesthetic link-up was unexpectedly profound. Instead of feeling like Sonified was imposing its digital soundtrack on the world, I felt I was accessing a layer of reality that is normally hidden from us. It was like a little dose of Morpheus’ red pill in The Matrix.
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Category: Art, Books, Culture, Drugs, Genetics, Interview, Multimedia, Music, Neuroscience, Personal computing, Photography, Science, Technology | Tagged , , , , , , , , | 25 Comments

Book of the Year: Thinking Person’s Guide to Autism

Leo Rosa in Disneyland

Leo Rosa visits the Magic Kingdom, 2011. Photo by Mike Des Roches.

A sea-change is happening in the world of autism. Just a few years ago, the loudest voices in media coverage of the issue were those of Jenny McCarthy’s “warrior moms,” defending Andrew Wakefield’s now-discredited claim that the combined measles-mumps-rubella vaccine causes autism, while spending hard-earned income on the latest cure for their “vaccine-injured” kids — which could allegedly be found in megadoses of vitamins, chelation therapy to remove heavy metals like mercury from the body, elaborate elimination diets, home hyperbaric chambers and saunas, and untested gray-market drugs.

It’s not hard to understand what motivated these parents: Intense love and concern for their children, along with healthy skepticism of corrupt multinational corporations and government agencies that have proven themselves fully capable of covering up crimes against humanity that resulted in the injury and death of thousands. The mothers and fathers of kids on the spectrum have excellent reasons to distrust the medical establishment — notably its unquestioning acceptance of Bruno Bettelheim’s “refrigerator mother” theory in the 1950s, which cruelly blamed parents for their kids’ developmental disorders, adding shame and stigma to the challenges of raising an autistic child.

Bruno Bettelheim

Psychiatrist/author Bruno Bettelheim, whose bestselling books blamed a generation of mothers for their children's autism.

Bettelheim’s Freudian claptrap was consigned to the dustbin of pseudoscience long ago – fittingly, by the father of an autistic boy, a Navy psychologist named Bernard Rimland, who surgically dismantled Bettelheim’s imperious nonsense in his own book in 1964, establishing autism as primarily a genetic and organic, rather than psychogenic, condition. A tireless networker, Rimland also founded the National Society for Autistic Children to speed parents’ access to treatments that he felt showed promise. By doing so, he anticipated the self-empowerment of citizen scientists in the digital age.

Unfortunately, Rimland — who undertook Herculean efforts to make his own son, Mark, “normal,” as he put it — was also one of the first parent-advocates to promote Wakefield’s 1998 case series in The Lancet linking autism to vaccines. That study has since been found to have been an elaborate fraud by the British Medical Journal, disowned by its co-authors, and retracted by The Lancet. But the seeds of panic it sowed among a generation of parents are now sprouting all over the world in resurgent epidemics of childhood diseases like the measles and whooping cough, after being kept in check for decades by vaccines. Meanwhile, many of the biomedical treatments championed by Rimland have turned out to be no more effective than placebo or outright dangerous, as well as punishingly expensive for families financially stressed to the limit.

With greater understanding and another decade of research, talk of “curing” autism is fading away, though no one should dispute the need to find more effective treatments for seizures and other physical co-morbidities that some autistic people experience. Instead of obsessing about causes and cures, however, a new generation of parents is proposing something radical: loving their kids just as they are, in all their flamboyant eccentricity, the product of a distinctive kind of human wiring that likely lasts a lifetime. (Even Rimland’s loyal successor at the Autism Research Institute in San Diego, Stephen Edelson, said in a recent interview, “If a practitioner claims to ‘cure’ autism, run in the other direction.”) Instead of inspiring hopelessness, this shift has liberated many parents to embrace and even celebrate their kids’ differences, while focusing on the real challenge of helping them build healthy, happy, and independent lives in a society that provides shamefully few supports, resources, and accommodations for autistic adults.

That’s the message of several groundbreaking books and films in recent years, including Roy Richard Grinker’s Unstrange Minds, Paul Collins’ Not Even Wrong, Thomas Anderson’s Neurodiversity, Priscilla Gilman’s The Anti-Romantic Child, Tom Fields-Meyer’s Following Ezra, and Todd Drezner’s inspiring documentary Loving Lampposts.

At the same time, technological advances like the Internet and social media, text-to-speech software, visual computing, and mobile devices are opening up ways for people on the spectrum — including many who would have been written off as non-verbal or “low-functioning” in previous eras — to boldly speak out on behalf of themselves and their community. It turns out that autistic self-advocates have a lot to say about how they’ve been stereotyped, marginalized, overlooked, and demeaned by so-called neurotypical culture — even by organizations that claim to speak for them. Two of the most powerful pieces of online writing I read this year were by self-advocates whose view of their own lives is informed by the social model of disability: Julia Bascom’s “Quiet Hands” and Rachel Cohen-Rottenberg’s “The Path That Chose Me.” Self-advocates like Bascom and Cohen-Rottenberg proudly own their autistic behavior and atypical cognitive styles, casting light on the ways that monolithic concepts of normalcy oppress everyone who doesn’t fit the mold.

With this sea-change in mind, my favorite book of the year on autism was curated and self-published by a group of parent-warriors with the express purpose of sparing other parents the grief, isolation, and confusion that followed their own kids’ diagnoses. Called the Thinking Person’s Guide to Autism, it offers helpful, positive, pragmatic, evidence-based advice for making the life of your kid and your family more rewarding and more joyful, starting today. I can’t think of a better holiday gift for someone with a loved one on the spectrum. With current estimates of autism prevalence running at 1 in 110 people in the US, the book deserves a wide readership.

cover, Thinking Person's Guide to Autism

Thinking Person's Guide to Autism

Covering a wide range of nuts-and-bolts subjects — from strategizing toilet training and and planning fun family outings, to helping your kid cope with bullying, to identifying the issues that a skilled speech-language therapist can work on with your child, to spotting and avoiding “autism cults,” to navigating byzantine special-needs bureaucracies and providing your child with appropriate assistive technology, to fighting for your kid’s right to an individualized education — the Thinking Person’s Guide to Autism is bracingly free of dogma, heavy-handed agendas, and pseudoscientific woo. What distinguishes it from, say, the fine guide for parents recently made freely downloadable by the National Autism Center, is the heart, soul, fierce intelligence, and subversive wit of the authors and editors, which shines on every page. Offering observations from parents, professionals, and autistics themselves, the book is a welcome dose of optimism and uncommonly good sense.

Many guidebooks for the parents of autistic kids are dry, clinical, and relentlessly grim; by contrast, this book is about real families facing ordinary situations with grace, grit, and humor. Editors Shannon Des Roches Rosa, Jennifer Byde Myers, Liz Ditz, Emily Willingham, and Carol Greenburg are prolific bloggers and tweeters on the war-torn autism frontier every day: battling misinformation and quackery, standing up for science and evidence-based medicine, and crucially, building mutually beneficial alliances between parents and self-advocates. Their message is: We’ve been there. We know. And we want to help you become your kid’s most powerful ally while respecting and celebrating his or her unique identity.

There’s also a cheeky irreverence to the tone of the essays — many of which originated in the blogosphere — that is utterly refreshing. I can’t think of another book on the subject that would include the statement, “Children with autism are well known for masturbating in public. (And who can blame them?)”

TPGA editors Shannon Des Roches Rosa and Jennifer Byde Myers

TPGA editors Shannon Des Roches Rosa and Jennifer Byde Myers.

“My son Leo is 11 and has high-octane autism,” says Des Roches Rosa when I ask her about the genesis of the project. “I’d been blogging about parenting and autism since 2003 and writing columns as BlogHer’s contributing editor for parenting kids with special needs for a year. The reactions to my posts had been great, but I remained frustrated by the amount of negativity and flat-out misinformation pervading the Internet and traditional publishing, and worried about a constant stream of people entering the autism communities and getting misdirected or outright hoodwinked. I’d been ranting about it for a while, and so had Jennifer and Liz, so one day we just said, ‘Fuck it, someone has create a one-stop, comprehensive, evidence-based autism handbook, with perspectives from autistics, parents, and professionals.’ So we took the plunge.”
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Category: Asperger Syndrome, Autism, Culture, Genetics, Health, History, Neurodiversity, Science, Science Writing, Social networks | 48 Comments

The Sketchbook of Susan Kare, the Artist Who Gave Computing a Human Face

Portrait of Susan Kare by R.J. Muna

Graphical interface pioneer Susan Kare, photo by R.J. Muna

Point, click.

The gestures and metaphors of icon-driven computing feel so natural and effortless to us now, it seems strange to recall navigating in the digital world any other way. Until Apple’s debut of the Macintosh in 1984, however, most of our interactions with computers looked more like this:

Command line

How did we get from there to here?

iPad photo by Ben Atkin

iPad photo by Ben Atkin, under Creative Commons license

The Mac wasn’t the first computer to present the user with a virtual desktop of files and folders instead of a command line and a blinking cursor. As every amateur geek historian knows, the core concepts behind the graphical user interface or GUI (including the icons, mouse, and bitmapped graphics) made their debut in 1968 in a presentation by Stanford Research Institute’s Doug Engelbart celebrated as the “mother of all demos.”

The revolutionary ideas in Engelbart’s demo were further developed at Xerox PARC, where a 24-year-old Steve Jobs took a legendary tour in 1979 that convinced him that the GUI represented the democratic future of computing. (“I thought it was the best thing I’d ever seen in my life,” he said later. “Within ten minutes, it was obvious to me that all computers would work like this someday.”) He promptly licensed the GUI technology he saw at work in a non-commercial product called the Xerox Alto for a modest amount of Apple stock, and the rest is Silicon Valley history.

Icon of Steve Jobs by Susan Kare, 1983

Steve Jobs, 1983, by Susan Kare

Shortly thereafter, Xerox doomed its chances to own the icon-driven future by pouring its resources into the Xerox Star, a product aimed strictly at the corporate market. Each Star purchase required an initial $75,000 installation and a network of external file servers, plus another $16,000 for each additional workstation (twice the price of a new car at the time). A digital revolution for the masses, it wasn’t.

The genius of Steve Jobs, Jef Raskin, and the rest of the Mac team was recognizing a huge untapped market for home computing among artists, musicians, writers, and other creative weirdos who might never have cared enough to master the arcane complexities of a command-line UI or blow a fortune on hulking digital workstations.

The challenge of designing a personal computer that “the rest of us” would not only buy, but fall crazy in love with, however, required input from the kind of people who might some day be convinced to try using a Mac. Fittingly, one of the team’s most auspicious early hires was a young artist herself: Susan Kare.

Kare on the Mac development team

Susan Kare joins the Mac team

After taking painting lessons as a young girl and graduating from New York University with a Ph.D. in fine arts, Kare moved to the Bay Area, where she took a curatorial job at the Fine Arts Museums of San Francisco. But she quickly felt like she was on the wrong side of the creative equation. “I’d go talk to artists in their studios for exhibitions,” she recalls, “but I really wanted to be working in my studio.”

Eventually Kare earned a commission from an Arkansas museum to sculpt a razorback hog out of steel. That was the project she was tackling in her garage in Palo Alto when she got a call from a high-school friend named Andy Hertzfeld, who was the lead software architect for the Macintosh operating system, offering her a job.
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Category: Apple, Art, Books, Culture, History, Media, Multimedia, Personal computing, Technology, Women | Tagged , , , , , , , , | 178 Comments

White House Appointee Ari Ne’eman on the Power of Autistic Community

Ari Ne'eman of ASAN. Photo by Aristide Economopoulos, used with permission.

Ari Ne'eman of ASAN. Photo by Aristide Economopoulos, used with permission.

Editor’s note: I’ve never been a fan of campaigns that propose to get people talking about important issues by telling them to shut up. (No “Day Without A Gay” in my name, thanks.) That’s why, when I saw a press release [PDF] a year ago from an organization promoting a social-media blackout for autism awareness called “Communication Shutdown,” it seemed like an awful idea. The goal of the event — touted by a roster of “celebs” including actor Steven Segal — was to give non-autistic people a taste of the frustration some people on the spectrum face in trying to communicate by convincing them to log off of all social networks for 24 hours (while downloading a $5 “charity app” that funneled money to the organization.) It seemed almost perverse to honor autistic people by shunning the very medium that has empowered many of them to find their own voices at last, after decades of being silenced behind the walls of institutions and well-meaning organizations that claim to speak for them.

Then I read an inspiring post from a young woman named Corina Becker calling for a counter-protest on November 1 that she called Autistics Speaking Day. She wrote: “What’s the tragedy? That people can’t speak? Or that too few are listening? Whether we’re verbal or nonverbal, does telling people to stay off social communication networks really create empathy for us? The Internet is how we find one another. It’s where many of us feel heard. It’s where many of us feel most comfortable.” I offered Becker this forum for a day, and I’m glad I did. Her essay “25 Things I Know as an Autistic Person” was honest and provocative. Yielding this space to someone on the spectrum each November 1 feels like a tradition worth maintaining.

This year, I’m honored to feature Ari Ne’eman, co-founder of the Autistic Self-Advocacy Network, and the first openly autistic White House appointee, nominated by President Obama in 2009 to sit on the National Council on Disability. Ne’eman — who is also one of the youngest presidential appointees in history at 23 — is one of the most passionate and articulate leaders of the neurodiversity movement, an emerging force for social justice that brings the empowering message of the disability-rights movement to those who think differently. From his seat on the Interagency Autism Coordinating Committee, which oversees policy initiatives within the Department of Health and Human Services, Ne’eman has been a powerful advocate for autistic people and their families, fighting for services and support, inclusive education, and public policy that will enable people on the spectrum to live and work in their own communities, while battling unethical research agendas and entrenched stereotypes of what autistic people can and can’t do.

I did the first major interview with Ne’eman on Wired.com after he took his seat on the NCD, and have followed his career as I write my book on autism and the neurodiversity movement. Ne’eman and I don’t always agree on everything, but I’ve often found myself mulling over things he says long after he says them. I’ve also watched him talk to autistic people and their families, to folks with other disabilities, and to student organizers and self-advocates across the country, and I’ve been consistently impressed with the depth of his knowledge, his compassion and empathy, and the earnestness of his commitment to civil rights for all. I’m grateful to him for speaking out today on the Public Library of Science.

Steve Silberman

Ari Ne'eman of ASAN. Photo by Aristide Economopoulos, used with permission.

Ari Ne'eman of ASAN. Photo by Aristide Economopoulos, used with permission.

Community Matters

by Ari Ne’eman

Community matters. One of the things I always appreciated about my first few weeks in college was the existence of the local Hillel — the Jewish student center active on my campus, and many hundreds of other campuses across the country. I was an out-of-state student going to a university where most of my classmates had grown up within no more than an hour’s drive of the campus. Having an immediate sense of community as a Jew was incredibly meaningful for me — and yet, I always felt a profound sense of regret that I didn’t have the same opportunities as an Autistic as I did as a Jew. Walking into the university disability services office was a far cry from the warmth of Shabbat dinner or outreach by campus Jewish organizations. Instead of being connected to others who could relate to my experiences as someone on the autism spectrum, I and other disabled students were usually greeted by a bored work-study student handing us a card upon which we could check one of a few “standard” accommodations — extended time, alternative print/braille, note-taking and a few others, crafted without thought to the needs of students like me. Anything else required a long wait and an uphill battle.

There are a lot of issues worth unpacking here — the low quality of support offered to disabled students in post-secondary education, the vast gap between programs focused around compliance and those focused around quality of life — but the one that I want to focus on today is the value of community. Being part of any minority group is always a challenging experience. Living in a world built for people who are not like you is alienating, whether it’s because of the way your brain works or because you don’t celebrate Christmas. In the disability world, we use concepts like the social model of disability to explain this experience. Service-provision and reasonable accommodations and any number of other things we fight to receive are intended to bridge the gap between the world as it is and the world as we’d like it to be. Yet, we still have so very far to go to create a more just society. The last few months have seen some heated discussions about privilege in both the autism community (that is, the community of non-Autistic parents and professionals with an interest in autism) and the Autistic community. I think one of the things that makes privilege such a hard topic to discuss with those who are, or would wish to be, our allies is that it continues to exist, even when we get the things we’re advocating for. In the best of all possible worlds we can create, we will still be expected to explain ourselves to others in ways that no neurotypical person would have to do. We will still frequently face assumptions and stereotypes that require us to work twice as hard for the same results.

So, what can we do when our best efforts to change the world we live in are simply not enough? What salvation exists for us, when our lives are still more difficult, even when we do get the supports and accommodations we want? These are vexing questions. Some people try and find the answer in the search for a “cure.” They believe that the best way to solve the problems facing Autistic people is make us appear as non-autistic as possible, or to prevent future generations of Autistic people from existing.

The first option bothers me deeply. When a child or adult is called “recovered,” they don’t change into a different person. All the things — good and bad — that we call autism don’t go away because you lose a word. Instead, that person no longer has language for what they experience. That person goes through the same struggles, the same difficulties, but lacks the context and the community to know how that it is okay for them to be who they are. Sometimes that prevents them from accessing needed help. Other times it just traps them in a place where they have to constantly look over their shoulder, worrying about who might notice them being just a little bit “off.” Either way, it isn’t an outcome we should wish upon anyone.
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Category: Asperger Syndrome, Autism, Culture, Education, Ethics, Health, History, Journalism, Media, Neurodiversity, Social networks | 15 Comments

What Kind of Buddhist was Steve Jobs, Really?

Kobun Chino Otogawa, Steve Jobs' Zen teacher.

One reason I was looking forward to reading Walter Isaacson’s new biography of Steve Jobs was my hope that, as a sharp-eyed reporter, Isaacson would probe to the heart of what one of the few entrepreneurs who really deserved the term “visionary” learned from Buddhism.

By now, everyone knows the stories of how the future founder of Apple dropped acid, went to India on a quest for spiritual insight, met a laughing Hindu holy man who took a straight razor to his unkempt hair, and was married in a Zen ceremony to Laurene Powell in 1991. I was curious how Jobs’ 20-year friendship with the monk who performed his wedding — a wiry, swarthily handsome Japanese priest named Kobun Chino Otogawa — informed his ambitious vision for Apple, beyond his acquiring a lifetime supply of black, Zen-ish Issey Miyake turtlenecks.

Isaacson does a fine job of showing how Jobs’ engagement with Buddhism was more than just a lotus-scented footnote to a brilliant Silicon Valley career. As a young seeker in the ’70s, Jobs didn’t just dabble in Zen, appropriating its elliptical aesthetic as a kind of exotic cologne. He turns out to have been a serious, diligent practitioner who undertook lengthy meditation retreats at Tassajara — the first Zen monastery in America, located at the end of a twisting dirt road in the mountains above Carmel — spending weeks on end “facing the wall,” as Zen students say, to observe the activity of his own mind.

Why would a former phone phreak who perseverated over the design of motherboards be interested in doing that? Using the mind to watch the mind, and ultimately to change how the mind works, is known in cognitive psychology as metacognition. Beneath the poetic cultural trappings of Buddhism, what intensive meditation offers to long-term practitioners is a kind of metacognitive hack of the human operating system (a metaphor that probably crossed Jobs’ mind at some point.) Sitting zazen offered Jobs a practical technique for upgrading the motherboard in his head.

The classic Buddhist image of this hack is that thoughts are like clouds passing through a spacious blue sky. All your life, you’ve been convinced that this succession of clouds comprises a stable, enduring identity — a “self.” But Buddhists believe this self this is an illusion that causes unnecessary suffering as you inevitably face change, loss, disease, old age, and death. One aim of practice is to reveal the gaps or discontinuities — the glimpses of blue sky — between the thoughts, so you’re not so taken in by the illusion, but instead learn to identify with the panoramic awareness in which the clouds arise and disappear.

Chögyam Trungpa Rinpoche in the early '70s

Chögyam Trungpa Rinpoche in the early '70s.

One of the books that inspired Jobs to become interested in this process was Cutting Through Spiritual Materialism by Chögyam Trungpa Rinpoche, a Tibetan lama who led a group of monks over the Himalayas in the 1950s to escape the invading Chinese army. Isaacson doesn’t do much more with Trungpa than name-check the title of his book, but he was a fascinating and controversial figure in his own right. After being recognized as the reincarnation of a great lama as a boy, Trungpa fled his home country and went to the British Isles, eventually graduating from Oxford. He began teaching in the traditional style at a meditation center in Scotland, complete with maroon robes, a shaved head, and vows of celibacy and sobriety; one of his early students went on to become the chameleonic pop star David Bowie.

After a nearly fatal car crash — driving into a joke shop after being distracted by a billboard, no less — Trungpa scrapped his old approach to teaching. He realized that the trappings of being a Tibetan lama were an unnecessary barrier to reaching the widest possible audience for Buddha’s revolutionary message. He jettisoned the robes, grew out his hair, eloped with the brilliant teenage daughter of a high-born British family, and emigrated to America, where he soon found legions of hippies who had reached the limits of psychedelic insight and were eager for teachings on the nature of mind from a deep-rooted contemplative tradition.

Trungpa became a hugely popular and influential teacher, praised (rightly) for his brilliant exposition of esoteric concepts in fresh, unsentimental, idiomatic English; and fiercely criticized (also rightly) for his heavy drinking and flamboyant womanizing. From his home base in Boulder, where he established a contemplative university called Naropa, Trungpa became the spiritual advisor to many counterculture luminaries, including poet Allen Ginsberg, underground film pioneer Stan Brakhage, author Ken Wilber, and singer/songwriter Joni Mitchell, who portrayed him (accurately) in a song on her haunting Hejira album called “Refuge of the Roads.”

I suspect that one of the things that Jobs found inspiring about Trungpa’s writing — beyond its bracingly direct tone and surgical deconstruction of the lies that prevent us from seeing things as they are — was his profound respect for artists, poets, and musicians, whom he saw as fellow warriors against delusion (which he called “neurosis,” adopting the lexicon of Western psychology.) This passage of Trungpa’s, from an essay on “dharma art,” could have been a blueprint for Jobs’ uncompromising vision for Apple:

Our attitude and integrity as artists are very important. We need to encourage and nourish the notion that we are not going to yield to the neurotic world. Inch by inch, step-by-step, our effort should wake people up through the world of art rather than please everyone and go along with the current. It might be painful for your clients or your audience to take the splinter out of their system, so to speak. It probably will be quite painful for them to accommodate such pressure coming from the artist’s vision. However, that should be done, and it is necessary. Otherwise, the world will go downhill, and the artist will go downhill also.
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Category: Art, Books, Buddhism, Cancer, Culture, History, Media, Mindfulness, Personal computing, Psychedelics, Technology | Tagged , , , , , , , , , , , , , | 194 Comments

What’s the Most Important Lesson You Learned from a Teacher?

Keith Karraker with a model of a DNA molecule

Keith with a model of a DNA molecule. Photo by Steve Silberman.

Five mornings a week, Keith gets up before dawn, puts on one of his geekiest bow ties (think Space Invaders, DNA helices, and daVinci’s Vitruvian Man), and drives half an hour down the freeway to teach teenagers about the wonders of science and the rigors of the scientific method at a local high school.

It’s a demanding life with little downtime. Keith’s evenings and weekends are often consumed by lesson planning and other school-related activities, but he’s perpetually stressed out about whether he’s doing enough for his kids. With his Ph.D. in chemical engineering from Berkeley — one of the top five such programs in the country — he could triple his schoolteacher’s salary by taking a job as a bench scientist at DuPont or Exxon-Mobil, as many of his fellow Berkeley grads have done.

But Keith has a passion for teaching. He lives for those moments when he can help a student make sense of the world through science. (He’s also my husband.)

People who make the career choices that Keith did don’t get a lot of respect these days. In endless discussions of “the crisis in education,” teachers are routinely described as burned out, bumbling, underqualified, and unfit — particularly if they belong to a union. In his new book Class Warfare, aspiring education reformer Steven Brill calls school districts “the most lavishly funded and entrenched bureaucracies in America… supported by an interest group — the teachers’ unions — which [have] money and playbooks every bit as effective in thwarting the public interest as Big Oil, the NRA, or Big Tobacco.”

It’s as if we’ve collectively decided that anyone who devotes his life to standing at the head of a classroom, when salaries are so low and school budgets are being slashed, can’t be that smart after all — an insidious legacy of the era when teaching was one of the few acceptable occupations for women.

Conversely, teachers who are clearly effective are portrayed as exceptional: self-sacrificing superheroes who single-handedly boost their students’ scores on standardized tests with little regard for such mundane concerns as a living wage, job security, health benefits, and adequate class resources. Meanwhile, billionaire venture capitalists like PayPal founder Peter Thiel advise young entrepreneurs to drop out of college altogether as a “bad investment” and get down to the serious business of raising capital in their teens — as if a wide-ranging education was just another expendable item on a spreadsheet.

While reading this moving NPR story about a neurosurgeon who phoned his high-school science teacher to express his gratitude after performing a tricky operation, it struck me how rarely we hear from accomplished people about the debt they owe to their teachers. The words of a true teacher stay with us a long time, offering wise counsel in a confusing world and a potent inoculation against foolishness. Yet we rarely get to thank them explicitly. Perhaps only in mid-life, we realize that the career path we chose was set, at least in part, by the recognition, praise, or clarifying criticism of a respected teacher when we were young.

Photo by Black Vanilla

Classroom photo by Black Vanilla.

In that spirit, I’ve asked some of the brightest folks I know in science and media to answer this simple question: What’s the most important lesson you learned from a teacher?

I’m delighted to report that a wide range of writers and thinkers were eager to share their stories. Among those who pay tribute to their most influential teachers here are two bestselling authors, Rebecca Skloot and Deborah Blum; the brilliant culture critic Mark Dery; award-winning science journalists David Dobbs, Amy Harmon, and Hillary Rosner; cognitive psychologist Uta Frith, the pioneer of autism research who translated Hans Asperger’s original paper; and several of the most perceptive and prolific bloggers around, including Maggie Koerth-Baker of BoingBoing, Geoff Manaugh of BLDGBLOG, and Ed Yong of Not Exactly Rocket Science. It turns out that by asking people that simple question, you open floodgates of memory and understanding.

If you feel inspired after reading these marvelous, charming, and occasionally terrifying tales from the classroom, please consider Googling up a memorable teacher and sending them an email to tell them what you’re up to now and express your appreciation. I guarantee that doing so will improve your day and profoundly touch the heart of someone who helped guide you into the world. Life is brief.

One of my favorite stories about a teacher’s enduring impact comes from Pulitzer prize-winning poet Gary Snyder, the real-life model for the hero of Jack Kerouac’s novel The Dharma Bums, and one of the first American students to study Zen in Japan. Snyder’s teacher there was a tough old monk who delivered his lengthy discourses on Buddhadharma in such a soft voice that his students strained to hear them, struggling to stay awake on their meditation cushions.

Years later, Snyder ran into one of his fellow students from his days in Kyoto, who was by then a senior monk himself. The monk told the poet, “Remember those talks rōshi gave that no one could hear? I’m beginning to hear them now.”

Rebecca Skloot

Rebecca Skloot is the author of The Immortal Life of Henrietta Lacks and a writer for Popular Science magazine.

As people who’ve read The Immortal Life of Henrietta Lacks know, I first learned about Henrietta and her amazing HeLa cells in a basic biology class when I was 16 years old. My teacher, Mr. Defler, wrote Henrietta’s name on the chalk board and told us she was a black woman. That was it, and class was over. I followed him to his office saying, “Who was she?  Did she have any kids? What do they think about those cells?”  He told me no one knew anything else about her.  ”But if you’re curious,” he told me, “go do some research, write up a little paper about what you find and I’ll give you some extra credit.”  At that point I was planning to be a veterinarian — something I’d been determined to do since I was a small child.  I had no intention of becoming a writer. I looked for information about Henrietta but didn’t find anything, so I didn’t write that extra credit paper. But I never forgot about her — in fact, I was a bit obsessed by her.
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Category: Art, Autism, Books, Buddhism, Education, Journalism, Media, Poetry, Science, Science Writing, Women, Writers | 34 Comments

Dear United Airlines: I Want My Kindle, and My Dignity, Back

"Tough luck, sucker! Sincerely, United Airlines"I recently flew from SFO to JFK on the first leg of a trip for book research. My three-part itinerary on United Airlines — all domestic flights — cost me $1334 in total for coach seats, even with an advance purchase. Of course, that impressive price tag didn’t include many amenities that used to come gratis with air travel, such as a hot meal even on shorter flights, the ability to check bags without paying an extra fee, or a reasonable expectation of arriving on schedule.

The metaphor of frogs that don’t notice the water around them is getting warmer until it’s boiling (and they’re cooked) is only an urban legend, say the vigilant debunkers at Snopes.com — but it’s an apt image for today’s frequent flyers. Schlepping their carry-ons through security mazes, standing shoeless with arms outstretched in bleeping machines, shrugging off dramatic confiscations of shampoo and toothpaste, and frantically rejiggering carefully-plotted itineraries at a moment’s notice, we’ve come to accept the current state of affairs as just another way that life sucks in the post-9/11 era. Never mind that I’m old enough to recall when a cross-country trip on an airplane, even in economy class, offered an opportunity to unwind and feel coddled in the lap of luxury for a few hours with a stratospheric view. Now I look forward to flying about as much as I look forward to a trip to the dentist.

Unlike the constitutionally enraged audience of Fox News, however, it’s not TSA pat-downs that bug me. I’d be flattering myself to believe there’s anything prurient about some guy in a rented uniform having to touch my middle-aged junk. I’m sure that feeling around in the waistbands of science bloggers for plastique is not what most TSA agents had in mind when they signed on for the job.

It’s the casually contemptuous attitude of the airline industry toward its customers in the face of snowballing inconveniences that I find soul-crushing. Formerly courteous gate agents now have the wary look and defensive manner of IRS agents who are accustomed to being convenient targets of hate and ridicule. Flight canceled or hours late? Routine. Connecting flights missed? Happens all the time. Massively oversold? That’s just how we roll. Bag gone missing despite a $50 handling fee? Fill out this form over there, sir — there’s a line of passengers behind you.

Not until my most recent trip, however, did I realize that the airline industry’s reckless attitude is conspiring with developments in the technology of personal computing to breed a new kind of nightmare in the formerly friendly skies.
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Category: Books, Culture, Journalism, Personal computing, Technology, Travel | Tagged , , | 114 Comments

An Eye-Opening Adventure in Socialized Medicine

Karl Marx, M.D.

Dr. Marx will see you now (image by Keith Karraker)

I woke up in a rented room in London in the middle of the night, feeling like my eyes had been packed with hot sand and the lids were somehow glued together. When I pried them apart, the whites of my eyes were an angry crimson.

Maybe it was nothing. I’d been told that the pollen counts in the UK this summer are sky high. A raging heat wave in a city that doesn’t really do air-conditioning (like my gloriously fogbound town of San Francisco) didn’t seem to be helping. But when I squinted in the bathroom mirror, I saw a greenish-white discharge collecting around my tear ducts. This looked like more than a bad case of hay fever.

Then I remembered that one of the cognitive psychologists I’d come to London to interview mentioned that she’d recently had a bad eye infection. I Googled “conjunctivitis.” It dawned on me that the bottle of water I drank in her office may have been a mixed blessing.

Great Portland Street station

Great Portland Street Tube station

But what to do? I was far from home with lots of work to do and no idea how to see a doctor locally. Thankfully, I didn’t have any appointments for a couple of days, and have health insurance from Kaiser-Permanente through my spouse’s employer. But I knew that getting reimbursed for treatment by a doctor outside the Kaiser network can be complex; what about an out-of-country doctor?

When I dialed the 800 number on my Kaiser card to find out what to do, an automated voice from AT&T informed me that I would be billed at the standard international calling rate of $1 a minute. After navigating a maze of call-center prompts, I sat on hold for 15 minutes.

The first Kaiser rep who took my call fired off a barrage of questions. Was I experiencing “blind spots, double vision, floaters, hallucinations, or any other problems” with my vision?  Yes — the goopy discharge from my tear ducts was making it hard to see, and I said so. But that turned out to be the wrong answer. The Kaiser rep simply repeated her question in a more brittle tone of voice and added, “Just answer yes or no.”

Yes, I was having problem with my vision, but not “double vision, floaters, or hallucinations.”  Judging by the structure of the question, I suspected that it was designed to fish for a different sort of problem than the one I had, such as evidence of entopic phenomena that might indicate something awry inside the eyeball, or even in the brain. I didn’t want to end up shunted onto the wrong track in the voicemail maze. “Floaters, hallucinations, and double-vision, no,” I explained,  ”but problems with my vision yes, because the discharge from my tear ducts…”

Sir,” she cut me off sternly. “These are yes or no questions. Answer either yes or no or I will not be able to help you.” I furiously tried to calculate which falsely binary oversimplifications were the right ones.

Conjunctivitis

Then back to limbo at $1 a minute. Finally an advice nurse picked up. She ran me through a nearly identical gantlet of questions — hadn’t my previous answers been logged into the database? — but unlike the previous insurance rep, the advice nurse could handle nuance. Given the severity of my symptoms, she told me, I should certainly certainly see a doctor right away — as soon as I had secured permission for an out-of-network exam with someone at the member-services line on the other side of my Kaiser card.

It was 2 in the morning in a strange country and my eyes were oozing green goo, but at least I was getting somewhere. I called the other number, navigated another maze of prompts, and waited. Tick, tick, tick.

Thankfully, the member-services rep was both efficient and sympathetic. Of course, she said, it must be upsetting to be having eye problems far from home. I should definitely go to a local clinic. But before she could give me permission to do that, she would have to talk to her supervisor, because she’d never dealt with someone having a medical problem outside the country before. Several minutes passed.

Then, good news from the supervisor — with one caveat. Yes, I should go see a doctor at a local clinic. But because this was all happening out-of-network, I would have to pay out of pocket. As long as I made sure to obtain all the necessary receipts and forms, however, I could submit them when I got home, and Kaiser would “open a case file” on me so I could be reimbursed.

I wondered how much the visit would cost me up front — $200, $500, $1000? The unfavorable exchange rate had already vacuumed out my wallet, just picking up Chunky Hummus Salad wraps and “flat white” coffees at Pret A Manger. But it didn’t matter.  My eyes needed help now, and I was almost certainly highly contagious; I didn’t want to pass this mess on to anyone else.

The member-services rep then explained that a Kaiser doctor would be calling me within the next four hours to give me additional information. I asked her gently if the doctor could possibly call in the morning London time, because I was already sleep-deprived and had a lot of work to do the following day. Sorry, she replied, that was just not possible. The doctor would have to call within the four-hour window allotted for my case — even if that meant the phone ringing at 5 in the morning.

Still, I was grateful to finally have permission to seek the care that I desperately needed. I called a number I found on the Web for urgent care in Marylebone, the central London neighborhood where I’d found a semi-affordable place to stay for three weeks. Amazingly, a human being picked up the phone right away — an affable guy with a disarmingly chummy accent and an empathic manner. Yes, yes, of course I should see a doctor right away. Where should they send him?

What? This guy was offering to dispatch someone to examine my eyes immediately in my apartment in the middle of the night?

I couldn’t even remember the last time I’d gotten a house call from a doctor — was it when I had chicken pox in 3rd grade? I expressed my astonishment. The chap on the other end of the line just laughed: I assure you, it’s no problem.
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Category: Bacteria, Ethics, Health, Politics, Science, TV | Tagged , , , , , , , | 145 Comments

Practical Tips on Writing a Book from 23 Brilliant Authors

Steve Silberman reading at the Booksmith in SF.

Steve Silberman reading at the Booksmith in SF. Photo by Heather Champ.

I love books. My late father Donald, who taught Wordsworth and Melville to inner-city kids for decades, used to read Ulysses to me while he carried me on his shoulders. Perhaps it was inevitable that I grew up to be a writer. Now, after years of investigative reporting for Wired and other magazines, I’m finally writing a book of my own.

The subject of my book is autism, the variety of human cognitive styles, and the rise of the neurodiversity movement. The seed of the project was an article I wrote for Wired in 2001 called “The Geek Syndrome” about autism and Asperger syndrome in high-tech communities like Silicon Valley. I’m happy and humbled to say that it was an influential article, and I still get email about it from the families of kids on the spectrum and from autistic people themselves, though it was published more than a decade ago.

The science of developmental disorders has made significant advances in recent years, and some of the social issues that I raised in the piece — such as the contributions that people with atypical cognitive styles have made to the progress of science, technology, and culture — seem more relevant than ever. At the same time, the wave of kids diagnosed with Autism Spectrum Disorders in the ’90s is now coming of age, and their heroically devoted families are facing fear and uncertainty about the future as crucial government-funded services and support provided to families of special-needs children dry up. Meanwhile, neurodiversity advocates are challenging narrow definitions of “normal” cognition, and autistic people — even those who are unable to employ spoken language — are using assistive technology like the iPad to express themselves. There’s a lot of new ground to cover.

I’ve signed a contract with a wonderful publisher — a Penguin imprint called Avery Books — and a sharp and enthusiastic editor named Rachel Holtzman. One of the most thrilling moments of my life as a writer was walking into Penguin headquarters in Manhattan and seeing classic jackets for Jack Kerouac’s novels like The Dharma Bums framed on the wall. It was reading the exhilarating, compassionate, and perennially fresh poetry and prose of Kerouac, Allen Ginsberg, Gary Snyder and their friends that made me want to grow up to be a writer in the first place.

I’m not sentimental about old media vs. new media. Nothing will ever replace the sublime feeling of sanctuary created by the printed page, but I treasure the books on my Kindle too, particularly when I’m reading at 30,000 feet. What I love is words — storytelling, the flow of well-wrought sentences, the gradual unfolding of a long and thoughtful tale, the private communion with an author’s mind.

But now comes the hard part. It’s one thing to work up a 4000-word magazine feature and another to sit down and write a 100,000-word book. I’m acutely aware that I’ve been granted a precious opportunity to cast light on forgotten history and provide a platform for voices that are rarely heard. At the same time, I’m scared out of my wits that the two decades of journalism that have led up to this project have not prepared me to write a good book. I wake up at 3am staring into the darkness, wondering if I’ll have the skills, discipline, and inner resources to pull it off.

I’ve chosen to deal with my anxiety by tapping into the wisdom of the hive mind. I recently sent email to the authors in my social network and asked them, “What do you wish you’d known about the process of writing a book that you didn’t know before you did it?”

I’m delighted with the sheer range of practical advice that poured in. The writers in this group are as diverse as the volumes that line the shelves in my home office.  There are top science writers and journalists like Carl Zimmer, Jonah Lehrer, Deborah Blum, Paula Span, and David Shenk; prolific blogger Geoff Manaugh of the endlessly fascinating BLDGBLOG, which focuses on architecture and the future of urbanism; award-winning poet and essayist August Kleinzahler; a wise-beyond-his-years entrepreneur named Ben Casnocha; a Zen master named John Tarrant and an author of Buddhist bestsellers, Sylvia Boorstein; two-time Rock and Roll Hall of Fame inductee David Crosby of the Byrds and Crosby, Stills, Nash and Young; and two of the geniuses who helped launch 21st century digital culture and the spunky “maker” movement, Cory Doctorow and Mark Frauenfelder of BoingBoing. A more diverse group of writers, talking about the nuts and bolts of their craft, would be hard to find anywhere on the Web.

A few things became clear as soon as their replies came in. First of all, I’ll have to throttle back my use of Twitter and Facebook to get this writing done (and I may never rev up my idle Quora account after all.) Secondly, scheduling intervals of regular exercise and renewal amid the hours of writing will be essential. And thirdly, I’ll certainly be buying and downloading a software program called Scrivener, which is a powerful word processor specifically designed for writing books and keeping vast amounts of related data in good order.

Reading these tips has made the voice in my head that whispers I can do this a little louder when my eyelids snap open before dawn. I hope the advice here inspires the creation of many great books, not only the one I hope to write. I’m deeply grateful for the time and attention of the master writers assembled here.

Enjoy — and good luck with your own writing!

The Tangled Bank by Carl Zimmer

Carl Zimmer

Author of A Planet of Viruses, The Tangled Bank, and Brain Cuttings

  1. Do as much research as possible away from the Internet — with living people, in real places.
  2. Be ready to organize vast amounts of data. Use a wall, or software like Scrivener.
  3. Be ready to amputate entire chapters. It will be painful.

The Genius in All Of UsDavid Shenk
Author of The Forgetting and The Genius in All of Us

  1. Make it great, no matter how long it takes. There’s no such thing as too many drafts. There’s no such thing as too much time spent. As you well know, a great book can last forever. A great book can change a person’s life. A mediocre book is just commerce.
  2. Get feedback — oodles of it. Along the way, show pieces of your book to lots of people — different types of people. Ply them with wine and beg them for candor. Find out what’s missing, what’s being misinterpreted, what isn’t convincing, what’s falling flat. This doesn’t mean you take every suggestion or write the book by committee. But this process will allow to marry your necessarily-precious vision with how people will actually react. I find that invaluable.
  3. Let some of you come through. You’re obviously not writing a memoir here, but this book is still partly about you — the world you see, the way you think, the experiences you have with people. And trust me, readers are interested in who you are. So don’t be afraid to let bits and pieces of your personality and even life details seep into the text. It will breathe a lot of life into the book.

For the Win by Cory DoctorowCory Doctorow
Author of With a Little Help, For the Win, Makers, and Down and Out in the Magic Kingdom

  1. Write every day. Anything you do every day gets easier. If you’re insanely busy, make the amount that you write every day small (100 words? 250 words?) but do it every day.
  2. Write even when the mood isn’t right. You can’t tell if what you’re writing is good or bad while you’re writing it.
  3. Write when the book sucks and it isn’t going anywhere. Just keep writing. It doesn’t suck. Your conscious is having a panic attack because it doesn’t believe your subconscious knows what it’s doing.
  4. Stop in the middle of a sentence, leaving a rough edge for you to start from the next day — that way, you can write three or five words without being “creative” and before you know it, you’re writing.
  5. Write even when the world is chaotic. You don’t need a cigarette, silence, music, a comfortable chair, or inner peace to write. You just need ten minutes and a writing implement.
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Category: Asperger Syndrome, Autism, Books, Buddhism, E-books, History, Journalism, Media, Mindfulness, Neurodiversity, Poetry, Science, Science Writing, Social networks, Technology, Writers | Tagged , , , , , , , , , , , , , , , , , , , , , | 197 Comments

Why the GOP Hates the National Science Foundation

Senator Tom Coburn

Senator Tom Coburn (R-OK) registers disapproval of NSF-sponsored Jell-O wrestling on the taxpayers' dime

Yesterday in Washington, amid great fanfare, the Republican senator from Oklahoma, Tom Coburn, released a 73-page report called The National Science Foundation: Under the Microscope. The report – deemed “scathing” in an “exclusive” by ABC News, and widely touted by other news organizations, particularly those owned by Rupert Murdoch — purported to expose a culture of waste, fraud, and mismanagement at the NSF.

“This report identifies over $3 billion in mismanagement at NSF,” the authors intoned ominously. “This includes tens of millions of dollars spent on questionable studies, excessive amounts of expired funds that have not been returned to the Treasury, inadequate contracting practices that unnecessarily increase costs, and a lack of metrics to demonstrate results.”

This sounds like a shocking waste of taxpayers’ money in a time of fiscal belt-tightening, and the type of “studies” cited by the report sound dubious indeed, including research into “How to ride a bike; When did dogs became man’s best friend; If political views are genetically pre-determined; How to improve the quality of wine; Do boys like to play with trucks and girls like to play with dolls.”

Three of the most egregious sounding items in Coburn’s report are described as a study in which a “scientist put shrimp on a tiny treadmill to determine if sickness impaired the mobility of the crustaceans,” an effort to design robots capable of folding laundry, and an outbreak of “jello (sic) wrestling in Antarctica at the NSF research station McMurdo station.” The Senator and his team of fiscal watchdogs helpfully included a grotesque snapshot of the Jell-O incident, which looks like it was cut and pasted from some other Congressional report on the menace of online pornography.

Jell-O wrestling at McMurdo Station

Actual picture and caption from Coburn's NSF report

Surely there is waste and mismanagement at the NSF, as there is at any large organization staffed by human beings, though even allegedly LOL-worthy studies of ailing shrimp can yield results that inform the fate of fisheries that provide food and jobs for millions of people. Many outlets in the mainstream media and the right-wing blogosphere dutifully mocked the alleged absurdities detailed in the report, complete with the inevitable photos of sick shrimp on treadmills (also furnished by Senator Coburn’s office) and Jell-O swingers partying at the South Pole in this year’s installment of a recurring GOP series that you might call Scientists Gone Wild – a phrase that actually appears as a headline in Coburn’s report. (“This science isn’t just weird, it’s expensive!” gushed Murdoch’s New York Post.)

Highlights of the 2008 version of the same partisan show included John McCain and Sarah Palin — then running for the highest offices in the land — fulminating about earmarks for “fruit fly research in Paris, France,” with Palin throwing in a plucky “I kid you not!” to express her taxpayer’s righteous indignation.

Never mind that thousands of world-changing breakthroughs in health and basic science have resulted from studying Drosophila, and that the specific research Palin was ridiculing was focused on proteins in the brain called neurexins that may play a role in neural dysfunction in autism. Never mind that improving care for kids with developmental disabilities (such as autism and Down’s syndrome) is allegedly one of the causes dearest to the heart of Palin, who is the mother of a kid with Down’s syndrome, and has just announced her candidacy for the presidency of the United States.  Her logic is not terribly profound: If government-funded scientists are behind these fruit-fly antics in “Paris, France,” the science must be fruity indeed.
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Category: Journalism, Media, Politics, Science, Sexuality, Social networks, War | Tagged , , , , , , | 39 Comments