0000-0002-8715-2896An OA Week guest post by patient advocate Christy Collins My daughter, Signe, was born with a very rare genetic condition called macrocephaly-capillary malformation syndrome or M-CM. This syndrome features a variety of congenital abnormalities

Open Access From a Patient Advocate’s Perspective: “Inserting Ourselves into the Science of a Condition”
Posted October 25, 2012 by