Blog Archives

No Ice Buckets or Pink Ribbons for Very Rare Genetic Diseases

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Catching Up With 3 Rare Disease Families

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Rare Disease Day 2014: A Parent Fights to Cure Blindness

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Gene Therapy News: Brain, Skin, Eye

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Second Gene Causes Retinoblastoma

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Rare Disease Day: What 5 Kids with Low Vision CAN Do

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